I was wondering if there who else shared my pain in the head. I decided to research and read other's stories. I think it is important to band together to help ourselves in a way that perhaps the doctors can not. I came across a site that seems to meet our needs.
MSN has created a community for those living with pseudotumor cerebri and their family members. The site operated by the manager, Heather, provides profiles of others and message boards for easy communicating. It also gives links to the IHRF, the Intercranial Hypertension Research Foundation, and the IH registry, which gives people an opportunity to sign up and learn about their own condition and others.
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Just thought I would let you know that you are far from alone!
But then again I guess you already know that, what with all you research and such... :-)
Kind regards,
Jeannine
A fellow pain in the head!
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